Expat Essentials

Thanks, climate change (updated): How I got tick-borne Lyme Disease without even knowing it

One morning in July 2024, my wife and co-CEO Cheryl looked down at my leg and said, “How did that happen?” “That” was a huge red rash on my left leg. There was no pain, and I hadn’t even noticed it. But we both knew it wasn’t good. I figured I’d been bitten by a spider. But when I went to the local doctor, Dr. Petra, she immediately says, “Oh, that’s Lyme Disease. You were bitten by a tick.”

When we think of global warming, we tend to think of melting ice caps and rising seas. Climate change is still an abstraction for most people. But I can assure you the real and present danger is the spread of tiny little parasites that spread diseases from hot climes to cold.

All things considered, I was lucky … people often don’t have any outward signs they’ve been bitten by tiny little seed ticks and never realize they have the Lyme Disease, or Lyme borreliosis bacterium, until weeks or months later, when Stage 2 symptoms set in. Those manifestations including pain, swelling joints, long-term heart and vision issues, facial palsy, arthritis, nerve pain, dizziness and more.

You really don’t want to get this disease.

Even the treatment is no fun because this powerful antibiotic doxycycline made me feel sluggish and nauseous. But if you start your antibiotic regimen quickly enough after you see the warning signs, the chances that you’ll get really ill drop to near zero. I hope …

That’s the good news.

The bad news is, the fun was just beginning.

Tick heaven

Avoiding ticks and Lyme Disease is getting more difficult in Europe because the warmer temperatures have expanded the range. Lyme Disease used to be a problem in Central Europe. Now, it’s moving north into Scandinavia, according to the European Center for Disease Prevention and Control.

No guesswork here … I had Lyme Disease. I also had scary red streaks on the inside of my leg indicating spreading infection.

According to Santé Publique France, the number of Lyme borreliosis cases is increasing significantly. The incidence rate rose from around 40 cases per 100,000 inhabitants in 2009 to 90 cases per 100,000 in 2020, with variations depending on the year. 

Your odds of contracting Lyme Disease come down to the increasing percentage of ticks in your area that have the bacterium.

I think I was bitten when I took our dog Sebastian on a walk along an overgrown path along a water feature outside our rural village. It was one of the rare warm days we’d had that spring, so I was out walking through the weeds in shorts. Well, walking through the tick-infested weeds.

Dumb.

During the past few years, our weather has been relatively warm for Northern Europe with periods of heavy rain, and the vegetation is especially dense.

We live in tick heaven, with abundant wildlife hosting ticks, including fox, deer, birds and who knows what.

That’s not to mention all the dogs, cats and horses. But the ticks here are tiny and very hard to find. So, I never even saw the little blood-sucking varmint that got me. Little did I know two years ago how bad it would get.

Lyme Disease, Round 2

In the spring of 2025, I was running laps on the village football pitch when I noticed a bit of lung inflammation. That was the beginning of 15 months of unsuccessful diagnoses that include dozens of tests, MRIs, blood panels and more (and sometimes excruciating) tests. My symptoms include shortness of breath and lung inflammation, a persistent dry cough, brain fog, joint pain that migrated around my torso, depression and periods of extreme fatigue that, while random, are thankfully brief.

One specialist called me and told me he thought he saw markers in my blood panels for Systemic Sclerosis, potentially a death sentence. Otherwise, none of the multiple specialists I’ve seen could even hazard a guess.

Then, two days ago, Cheryl (whom I now call “Dr. Boyd”) came home and said, “I know what’s wrong with you. You have post treatment Lyme Disease syndrome, and possibly Babesiosis.” About 20 percent of Lyme victims get PTLDS, which includes all the symptoms I have. Babesiosis is still rare in the Netherlands, but it explains a lot of the weird issues I have such as back pain, fevers, chills and arthritis-like pains that are in my ankles one day, my knees the next and my hips the day after.

PTLDS is untreatable, or at least researchers aren’t sure what works, though drugs to tamp down the immune system seem to hold promise. Symptoms tend to fade with time, but it can take years. Babesiosis is a caused by a parasite and can be treated with antibiotics and anti-parasite drugs.

I want to make clear that this is our diagnosis based on living with this syndrome.

The doctors still plan tests … lots and lots of tests. I told Cheryl that one day, a doctor would call and say, “I want to speak with Mr. Boyd,” and she’d say, “Oh, he passed away months ago.” And the doctor would reply, “He can’t. We still have tests to do.”

This isn’t, in all fairness, on the doctors. I never told them I had had Lyme Disease and apparently it wasn’t in my records. I just didn’t know about post-treatment Lyme Disease syndrome. Lyme Disease was relatively unknown until the late 20th century, so researchers have really just begun to understand the disease. As the clinicians say, the “specific nature of its pathology and etiology is poorly understood.”

Great ….

Precautions

What should I have done to avoid the ticks?

Well, using common sense would have been a good start:

• If you go hiking in the wilds of the Netherlands (and trust me, there’s way more protected woodlands, heaths and swamps here in the south than you might think), don’t wear shorts. Long pants are a must if you get into the tall grass. And even then, the little critters can get at our ankles, so wear socks.

Double check your skin and scalp after a walk.

• Apparently, DEET and other insect repellants are a barrier to ticks.

• Check your dog. They’re like Uber for ticks. And a flea and tick collar is a must.

• If you find ticks, remove them immediately. Apparently I hosted my attacker for quite a while without realizing it and that might have led to complications. A tick has to stay attached for 36 to 48 hours or more before the Lyme disease bacterium can be transmitted. If you remove it within 24 hours, the risk is greatly reduced, according to the U.S. Federal Drug Administration literature I read.

• Though they can save your life, antibiotics themselves are a problem because they wipe out your beneficial gut bacteria that keep you healthy. And they can lead to risk to infection with antibiotic-resistant bacteria. The literature I’ve seen says eating fresh veggies and avoiding processed foods will restore the healthy bacteria faster.

Sadly, Lyme Disease is just the beginning. Again, due to climate change, there are more and more deadly vector-transmitted diseases popping up in Europe, including mosquitos spreading dengue fever and malaria, according to the Guardian. But we are lucky to be expats living in the Netherlands where healthcare is excellent (thanks, Petra!), drugs are plentiful and effective and doctors and researchers have a pretty good understanding of the disease.

But get this: Lyme Disease was first diagnosed as a separate condition for the first time in 1975. With the wonders of modern science, this is a great time to be alive, though it’s getting harder to stay that way.

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See more about avoiding ticks and diseases here in Dispatches’ archives.

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Co-CEO of Dispatches Europe. A former military reporter, I'm a serial expat who has lived in France, Turkey, Germany and the Netherlands.

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